Disabilities and ALN
Further Resources
+ Websites
All of these links are recommended by SPW members, get in touch if there are any you would like to be included
Autism
We are the UK's leading charity for people on the autism spectrum and their families.
National Autistic Society Bridgend and District Branch
British Dyslexia Association
I've used for broad information.
Cerbra
Our research helps children with brain conditions and their families discover a better life together.
Centre of Sign Sight and Sound
Making sense of sensory loss.
Deaf LGBTIQA
Deaf LGBTIQA provides information, represents and supports deaf people who are either coming out and/or identify as LGBTIQA.
Different Abilities - support group
Diverse Abilities is Dorset’s disability charity supporting children and adults with profound physical and learning disabilities across the county since 1955
EDS UK
EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome.
Elite Supported Employment
We support people to access employment. Our current youth project is called Engage to Change and supports 16-25 year olds across Wales.
Disability Law Service Fighting injustice for disabled people
Family Fund
If you’re raising a disabled or seriously ill child, we might be able to help.
Fifth Sense
Support people affected by smell and taste disorders across the world
FibroSupport - Wales
A registered charity (1193505) - Supporting those living with Fibromyalgia
Follow Your Dreams
National charity operating in England and Wales that inspires children and young people with learning disabilities to follow their dreams.
Genetic Alliance
We are the national charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions.
Hope GB in Torfaen
Great for those with ASD or related conditions.
Hypermobility
This is a really useful guide guide for schools
Joining the Dots Parents Carers
Wales is a support group for families of children with additional needs. There is also a Joining the Dots Facebook group that professionals can join too where information is shared.
Kristy Forbes autism & ND specialist support and autistic advocate
National Association of Therapeutic Parenting
We support people looking after children who have suffered early life trauma. Our ultimate aim is to improve outcomes for all our children.
Not Fine in School
Family Support for School Attendance Difficulties
Parents Voices in Wales CIC is a FB Group
The PDA Society
PDA (Pathological Demand Avoidance) is widely understood to be a profile on the autism spectrum.
Positive PDA
For those with a child presenting with Pathological demand avoidance, this is a great site, run by a local mum and she is organising the second PDA summit for April 2021. A fantastic resource.
PoTS UK
PoTS UK was founded by a group of healthcare professionals with PoTS who recognised the need to increase awareness of this condition.
Regard
Regard is a national organisation of lesbians, gay men, bi, trans and queer people (LGBTQ) who self-identify as disabled.
SEND VCB
Run by Yvonne Newbold is an amazing resource for parents with children with violent and challenging behaviour, very common amongst autistic children. She helps families understand why and support their children to change.
SNAP Cymru
Supporting parents and children with ALN and disabilities, also had a helpline
Speech and language
Currently have a free parent portal. I've recommended this to parents of the children I support in school.
STARS - Seeing The Ability Really Shine
Providing education, support and opportunities for adults with learning disabilities.
Sunshine Support
We provide independent information, advice and support to parents/carers and professionals of children and young people with special educational needs.
SWAN UK
SWAN UK (Syndromes Without A Name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK.
Deaf LGBTIQA
Deaf LGBTIQA provides information, represents and supports deaf people who are either coming out and/or identify as LGBTIQA.
Different Abilities - support group
Diverse Abilities is Dorset’s disability charity supporting children and adults with profound physical and learning disabilities across the county since 1955
EDS UK
EDS UK is the only UK charity to offer support to people touched by all types of Ehlers-Danlos syndrome.
Elite Supported Employment
We support people to access employment. Our current youth project is called Engage to Change and supports 16-25 year olds across Wales.
Disability Law Service Fighting injustice for disabled people
Family Fund
If you’re raising a disabled or seriously ill child, we might be able to help.
Fifth Sense
Support people affected by smell and taste disorders across the world
FibroSupport - Wales
A registered charity (1193505) - Supporting those living with Fibromyalgia
Follow Your Dreams
National charity operating in England and Wales that inspires children and young people with learning disabilities to follow their dreams.
Genetic Alliance
We are the national charity working to improve the lives of patients and families affected by genetic, rare and undiagnosed conditions.
Hope GB in Torfaen
Great for those with ASD or related conditions.
Hypermobility
This is a really useful guide guide for schools
Joining the Dots Parents Carers
Wales is a support group for families of children with additional needs. There is also a Joining the Dots Facebook group that professionals can join too where information is shared.
Kristy Forbes autism & ND specialist support and autistic advocate
National Association of Therapeutic Parenting
We support people looking after children who have suffered early life trauma. Our ultimate aim is to improve outcomes for all our children.
Not Fine in School
Family Support for School Attendance Difficulties
Parents Voices in Wales CIC is a FB Group
The PDA Society
PDA (Pathological Demand Avoidance) is widely understood to be a profile on the autism spectrum.
Positive PDA
For those with a child presenting with Pathological demand avoidance, this is a great site, run by a local mum and she is organising the second PDA summit for April 2021. A fantastic resource.
PoTS UK
PoTS UK was founded by a group of healthcare professionals with PoTS who recognised the need to increase awareness of this condition.
Regard
Regard is a national organisation of lesbians, gay men, bi, trans and queer people (LGBTQ) who self-identify as disabled.
SEND VCB
Run by Yvonne Newbold is an amazing resource for parents with children with violent and challenging behaviour, very common amongst autistic children. She helps families understand why and support their children to change.
SNAP Cymru
Supporting parents and children with ALN and disabilities, also had a helpline
Speech and language
Currently have a free parent portal. I've recommended this to parents of the children I support in school.
STARS - Seeing The Ability Really Shine
Providing education, support and opportunities for adults with learning disabilities.
Sunshine Support
We provide independent information, advice and support to parents/carers and professionals of children and young people with special educational needs.
SWAN UK
SWAN UK (Syndromes Without A Name) is the only dedicated support network available for families of children and young adults with undiagnosed genetic conditions in the UK.
+ Books
The A-Z of Therapeutic Parenting
Mae'n Iawn Bod Yn Wahanol / It's Okay to be Different By Todd Parr
The Tea Dragon Society By Katie O'Neill
Disability Visibility: First-Person Stories from the Twenty-First Century By Alice Wong
Sitting Pretty: The View from My Ordinary Resilient Disabled Body By Rebekah Taussig
Being Heumann: An Unrepentant Memoir of a Disability Rights Activist by Judith Heumann
+ Podcasts
BBC Ouch
BBC Ouch is BBC's disability site. They have been producing blogs and a podcast for years.
The RNIB Library
The RNIB Library is the largest of its kind in the UK, and it's completely free, with over 60,000 items in the collection. This website is your gateway to the entire collection in one place: Audio, Braille, Music – there is so much to access, borrow and enjoy.
Latest Blogs
Every month we spotlight amazing organisations in Wales that are doing great things in the community. This month we are getting to know Advocacy Support Cymru including what services they offer and looking at ways they promote social inclusion, equality and social justice.